Table of Contents
- My daughter Lila was identified with epilepsy—she’s considered one of 250,000 Australians with epilepsy
- After I came upon that Epilepsy Motion Australia had a funding shortfall due to the impact of COVID, I needed to do one thing. And that one thing is the Million Greenback Teddy Bear
- Why a teddy bear?
- Right here’s the Million Greenback Teddy Bear himself. We’ve dubbed him Maximillion
- Lila even dyed her hair purple for Purple Day―the annual Epilepsy Consciousness Day
- Teddy is out and about spreading the phrase. Right here he’s chilling with Tommy Little
- Lachy the Purple Wiggle is supporting the Million Greenback Teddy Bear. His brother has epilepsy
- Teddy getting his trend on with the Christian Kimber group
- Teddy going for a stroll with Jessica Rowe
- Teddy stress-free with Melissa Doyle
- Teddy’s non-public lesson with former Socceroo captain Paul Wade
- Teddy chatting with Peter Fitzsimons
- Teddy hanging out with Russel Howcroft
- Teddy with appearing legend Nadine Garner
- The Million Greenback Teddy Bear onerous at work enhancing the launch video
- We made a launch video narrated by the unbelievable actor Nadine Garner and shot on the unbelievable Rippon Lea Historic Mansion
In late 2018, I used to be out for dinner with my son Roarke and daughter Lila.We have been having a grand chat when, mid-sentence, Lila froze, along with her arms within the air. Her eyes rolled again in her head, after which she toppled off the aspect of the chair. Out of nowhere… I believed she had handed away.
Then, she began convulsing uncontrollably on the bottom. For what appeared like ceaselessly. Then, she was out. Utterly limp. Unresponsive. It was the worst second of my life. The restaurant known as an ambulance and I panicked and tried to get her to get up. However she wouldn’t reply.
I believed perhaps she was choking. However her jaw was clenched shut. I prised her mouth open, and blood trickled out. However at the very least she was respiratory.
Finally, the ambulance arrived. It was horrific. She had one other seizure by the aspect of the restaurant. Then one other within the ambulance on the best way to the hospital.
We found later that she was having tonic-clonic seizures. However they despatched us house with none solutions. Apparently, some individuals simply have a seizure out of the blue and by no means have one other one.
Then, she had three extra of those tonic-clonic seizures a couple of weeks later at college. Then, some extra one other few weeks after that. She additionally developed this sigh/hiccup that she would do forty or fifty instances a day while staring off into the gap for a brief time frame. These are known as absence seizures.
Lila was identified with epilepsy, and it has fully modified our lives.
Extra information: milliondollarteddybear.com
My daughter Lila was identified with epilepsy—she’s considered one of 250,000 Australians with epilepsy
Right here’s Lila present process an EEG to check her epilepsy.
She is a fearless little lady, however we’ve got to tug her again from climbing bushes, swimming, or water snowboarding, in case she has a seizure in a harmful place.
Greater than 250,000 Australians have epilepsy, which is fairly staggering. Not to mention the tens of millions extra household and buddies who’re affected by it.
After I came upon that Epilepsy Motion Australia had a funding shortfall due to the impact of COVID, I needed to do one thing. And that one thing is the Million Greenback Teddy Bear
(Lila and me with Child Bear―the inspiration for the Million Greenback Teddy Bear)
So, once I came upon that the great individuals at Epilepsy Motion Australia had a funding shortfall due to the impact of COVID, I needed to do one thing. And that one thing is the Million Greenback Teddy Bear.
Yep, we hope to promote one teddy to an incredible philanthropist with a coronary heart of gold for $1,000,000.
Why a teddy bear?
Properly, one of many many great issues Epilepsy Motion Australia does is to ship younger children with epilepsy their very own Cuddly Ted-E-Bear (the E stands for epilepsy), which helps them really feel the love and assist they’ll get in a really tangible approach. Lila has one (she calls him Child Bear) and he’s a cherished possession.
Right here’s the Million Greenback Teddy Bear himself. We’ve dubbed him Maximillion
His garments have been designed (and handmade) by Australia’s 2019 Nationwide Designer of the Yr, Christian Kimber (whose brother has epilepsy).
With this million {dollars}, Epilepsy Motion Australia will have the ability to present:
– assist for individuals with epilepsy of all ages, from very younger kids to their households;
– seven-days-a-week telephone assist, with a educated nurse on the finish of the road;
– epilepsy schooling for the broader group;
– campaigning for brand new therapies;
– and elevating consciousness of epilepsy and its impacts.
Lila even dyed her hair purple for Purple Day―the annual Epilepsy Consciousness Day
Teddy is out and about spreading the phrase. Right here he’s chilling with Tommy Little
Lachy the Purple Wiggle is supporting the Million Greenback Teddy Bear. His brother has epilepsy
Teddy getting his trend on with the Christian Kimber group
Teddy going for a stroll with Jessica Rowe
Teddy stress-free with Melissa Doyle
Teddy’s non-public lesson with former Socceroo captain Paul Wade
Teddy chatting with Peter Fitzsimons
Teddy hanging out with Russel Howcroft
Teddy with appearing legend Nadine Garner
The Million Greenback Teddy Bear onerous at work enhancing the launch video
We made a launch video narrated by the unbelievable actor Nadine Garner and shot on the unbelievable Rippon Lea Historic Mansion
Go to our website to study extra and unfold the phrase!
If anybody occurs to know any squillionaires, ship them there! It might imply the world to my daughter Lila. And to the tens of millions extra who’re affected by this mysterious neurological dysfunction.
When you don’t have one million {dollars}, each little bit might help, discover out how one can donate here.
